Center for Health Literacy Promotion Blog
In a recent meeting to discuss online searching for health
information, Rachel was introduced as a UX writer for Google. Mystified, I
googled her job title. Turns out UX is short for User Experience. A UX writer
is first an advocate for the user of information. Rachel does not think
about educating readers who need to process and understand information
and gain knowledge. Rather, she
"creates useful, meaningful text that helps users complete the task
Imagine how information from health care organizations would be
different if producers and reviewers aimed not to educate patients with low
literacy, but rather to "simplify and beautify the user experience"
of obtaining treatment, using medications, or navigating facilities. Imagine if we wrote not for "low literate
patients", but for an information user assumed to be competent, although
unfamiliar with the content and context.
What if we regularly used empathy along with logic and hard data to
inform content choices? What if we worked closely with teammates from a variety
Rachel writes about Google software products. Elsewhere, her
position might be titled technical writer. What differentiates her from technical writers, and most
health information producers, is her intent to improve the users experience,
instead of intent to improve the information. Another essential differentiating factor is that Rachel the
UX writer assumes users of the info she produces will have different levels of
proficiency, background knowledge, and experience. She does not require them to
learn a new vocabulary. She does not demand reforms to public education to
increase computer literacy so that people can benefit from her products and
services. Rather she enables them
to use her information with the skills they have.
A UX mindset would transform health information and the process
of health education.
A UX Writer's job
description would be a good starting place to describe a health literacy
specialist or health educator position. Find one here.
producers should be less concerned about healthcare consumers’ lack of literacy skills and more
concerned that we are all “limited-capacity
"In any situation, a person decides
what to do based on under-
standing of facts, issues, options
for action, and consequences.”
This statement from an article titled “Improving
Health Literacy” at PlainLanguage.gov
is bound to set information providers and health literacy promoters down a dead
end. It describes health decisions that fit the process for effective decision
making taught in graduate classes Dartmouth [http://www.umassd.edu/fycm/decisionmaking/process/] and
multiple models of how health decisions ought to be made. We hope and
trust that healthcare professionals use this conscious, deliberative,
analytical, linear, reasoned process for treatment decisions. Consumers do not.
decisions are based on emotion
are much more likely to use what experts in decision-making processes call an “experimental” approach that is intuitive,
automatic, associative and driven by emotions. It is feelings that make meaning from information and
motivate actions. Because we can only use a limited amount of information, we
consumers automatically search for info that warrants our attention and info we
can disregard. Health decisions typically are complex and require complex
information on unfamiliar topics,
using unfamiliar terms and concepts. More info requires more time and energy and often yields
more uncertainty and competing messages. Even otherwise information-hungry
consumers may limit information seeking and almost certainly disregard available
information that is hard to use when physically, mentally, spiritually and
financial stressed by illness. The value of plain language information in a
simple form is that it makes information easier to use so that consumers do not
have to use short cuts.
Plain language information is necessary
but insufficient to improve health literacy. It needs to be formulated to
make decision-making, rather than reading less cognitively and emotionally
demanding. It needs to come with direct support to help people process the info
based on their specific needs and the everyday home context in which they are
expected transform decisions into actions and outcomes.
Consumers in Healthcare:
The burden of choice. (2005). Shaller, D. California Healthcare Foundation,
Oakland. Online at http://www.chcf.org/~/media/MEDIA%20LIBRARY%20Files/PDF/C/PDF%20ConsumersInHealthCareBurdenChoice.pdf
The Adaptive Decision
Maker. John W. Payne, James R. Bettman and Eric J. Johnson, Cambridge:
Cambridge University Press, 1993,307 pp. ISBN 0 521 41505 5 (hc), ISBN 0 521
42526 3 (pb)
saw it again: In fact, 9 out of
10 US adults do not have the skills to manage their health (from a newsletter
whose author shall remain unnamed)
Last week, I saw that
figure, stated as a related but different known fact, on the NYU student health
website: Nearly 9 of 10 adults
have difficulty using the everyday health information that is routinely
available in our healthcare facilities, retail outlets, media, and communities
sure who our
refers to). That same quote is found in the CDC report titled The State of
Aging and Health in America 2013
Here’s another version made somewhat more accurate by qualifiers: Only
12 percent of adults have Proficient health literacy, according to the National
Assessment of Adult Literacy. In other words, nearly 9 out of 10 adults may
lack the skills needed to manage their health and prevent disease.
The source of this oft quoted and variously interpreted
statement is data from the 2003 National Assessment of Adult Literacy. That was
a lengthy pencil and paper literacy test taken by 19,000 US adults 12 years
ago. It included “health tasks”, hypothetical situations thought to represent
common literacy activities related to health.
Use your critical
statement is not a fact.
It is a national-level estimate
extrapolated from a population sample. Research, and especially literacy
testing, does not produce fact, only likelihood; in this case, at the national
level. The statement is meaningless in discussion of individuals.
test has been used once. Its validity is unknown.
literacy tasks” in the test are common only to insured, experienced patients.
example: A Proficient rating means the person can use a table to calculate
an employee’s share of health insurance costs for a year. This is nonsense to a person who has never qualified
for employer-based coverage.
Basic means a person cannot read a short set of instructions and identify what
is permissible to drink before a medical test. More nonsense for a person who has never had a medical test.
information was produced to publicize a problem, spur action and advocate for
research funding. That may explain why reports refer to “only 12 % are
Proficient” and then round down to 10% and delete nearly to state that 9
out of 10 are not proficient; and suggest that individuals need to score at the
Proficient level to manage their health, or use everyday health information, or
prevent disease. A more accurate,
but less motivating report might have said, “Only 14% of US adults scored Below Basic in heath literacy.
They are primarily impoverished, socially disadvantaged adults who attended low
quality schools and are excluded from the healthcare system.”
is rarely reported that “the majority of US adults” (53%) scored at the
Intermediate level, and another 22% (“[nearly] 1 in 4”) demonstrated Basic
health literacy. If it is
true, as suggested, that a Proficient heath literacy score translates to
proficient management of health, disease prevention, and “understanding basic
heath information to make appropriate decisions”; and if it’s also true an
Intermediate or Basic score translates to incompetence, that’s an incrimination
of a healthcare system that benefits only 1 out 10 it intends to serve.
rarely reported that 30% of college graduates scored at the Proficient level,
compared to 3% of high school graduates and 1% of non-graduates. That figure
suggests making higher education accessible to all adults as a matter of health
policy and healthcare cost containment. It also suggests you need a college
degree to benefit from “the best healthcare system in the world”
It is imperative to
move away from this questionable, disempowering, self-defeating, system-centric
oft-repeated extrapolation that 9 out of 10 US adults do not have the skills to
manage their health. Healthcare would benefit by using theories of health
literacy as an asset and a pragmatic intervention to design health services
that benefit people with the skills they have instead of lamenting that people
just are not smart enough to use health information and services. As long as we
contend that what we need in order to have quality, equitable, affordable
healthcare is a smarter patient; we’re spinning our wheels.
My grandson was up to bat in his first little league game.
I shouted enthusiastically from the stands, “Eye on the ball,
Rhett. Eye on the ball!” He
stepped out of the box, lowered the bat, and replied in a low bored voice with all the power of a
stage whisper, “ I
already know that. You don’t need to tell me.” Now I know how he felt.
A headline flashed on my screen this morning “Information
materials… too complex for patients".
We know that. For sure. For certain. No doubt. No question. A PubMed search on “readability
of patient information” brings
up 2149 published articles; 45 already in
2015, one every work day.
The continued focus on patients’ inability
to understand information from healthcare providers and insurers is not just
wasteful, it’s harmful in several ways.
Readability is the low hanging fruit of health literacy
research. It’s picked. There are so many urgent unanswered questions to investigate. Funders and editors, please require more forward thinking, and more
Readability studies are about patients and their deficits. On average, Americans spend about 1
hour per year as a patient in a clinical setting. The near exclusive focus on
patients’ in health literacy research excludes most of us, most of the
time. It defines individuals as their disease. It suggests a person only needs
health literacy when seeking or obtaining medical care. If research refocused on what promotes a person’s
or community’s ability to use information and services for health, risk
would less often progress to need, and fewer of us would be patients. We would
discover interventions to complement information-improvement initiatives.
Focus on “low literate patients’” deficits is disempowering, disrespectful,
and self-defeating. It positions
patients as incapable of doing what is required to recover and cope. It breeds
unnecessary dependence on professionals. It positions patients as victims of
disease, and providers as their rescuers — both
untenable positions in a system that strives to be patient centered and
prevention focused and wants patients to self-manage disease and be partners in
We need no more
studies to document the problem. We need to remove barriers, and develop
skills, particularly interactive and reflective skills which are typically
categorized as advanced health literacy skills and not included in health
literacy studies. We need to
understand the contexts in which people strive to act on information to keep
healthy, live well with disease, and raise heathy competent children. We need recognize and research health
literacy beyond the clinical encounter in everyday life where information is understood
and acted on - or not.
Let’s stop analyzing how bad
health-related information is, put into practice what we know about making it
clear and actionable, and move on
to figure out what, besides plain language, empowers people translate information
into health promoting actions and outcomes.
I’m proud of my city. We are catching up
with the rest of the world.
Yesterday Mayor Ed Murray announced Seattle will provide paid
parental leave for City employees.
All parents — foster parents, adoptive parents,
mothers and fathers— will have the option to take four
weeks off —with pay— to bond with a new child. The mayor is encouraging other
employers in the state to offer similar benefits.
This should not be the surprise, the bold move, the
breakthrough that it is.
The US is the only developed country on the planet that does not
give new parents paid time off to support attachment and bonding and infant
brain development, and to put their newborns on a positive health trajectory.
President Obama announced a similar new
policy to provide six weeks paid parental leave to federal workers in
his State of the Union address.
A step toward gender equity in the workplace
I’m especially glad the paid leave
policy will apply to fathers as well as mothers. That presents child care as a
shared responsibility. It puts to rest arguments and unfair choices that have plagued so many women’s
career…You are on the mommy track, so you can’t
be on the partnership track. The paid leave policy protects mothers’ earning
potential, avoids unfair expectations and burdens and removes that awful choice
between career and family.
Most of all, this investment in parents shows we are a society
that values its children, including adopted children and those in foster care.
It shows respect for the role of fathers in raising children, and the role of
mothers in the workforce. It
acknowledges the contributions of
foster parents — special people who can love other
people’s children as their own, and encourages
foster parenting. Thank you Mr Mayor and Mr President for leadership toward a
stronger city, region and society.
is teen dating abuse awareness month.
Throughout the month of February, teens
and organizations across the country have been working together to raise
awareness about teen dating violence.
As a dating abuse prevention educator February is my busiest month
(which is why it has taken me so long to write this blog). Every week I visit
the schools in my community to discuss dating violence, healthy relationships
and how to recognize warning signs. I speak with students from 7
grade all the way through college about their experiences. I am proud of what I
do and I am grateful to work in a community that considers these issues
important enough to discuss with our children all throughout they year. I wish
I could say the same for the community I live in. Not every district or county recognizes the importance of
discussing healthy relationships with adolescence, which is shocking
considering the statistics (see below). I have tried on more than one occasion
to bring presentations similar to the ones I do in other communities to my
son’s school to no avail. The
question is why aren’t some schools or some communities talking about dating
The simple answer is, it is not an easy
subject to talk about. We are taught to ignore or to stay quiet when we see
signs of abuse. We are not encouraged to talk about abusive behaviors in
relationships. If you are parents, it's even more challenging to open a
conversation with your child about relationships. Where do you begin, and at
It is important to recognize that dating abuse affects
everyone. It knows no boundaries and crosses all barriers. It can and does
happen to anyone, at any time at any age all around the world. The repercussions
are far-reaching and impossible to ignore. According to loveisrespect.org violent relationships in
adolescence can have serious ramifications by putting the victims at higher
risk for substance abuse, eating disorders, risky sexual behavior and further
domestic violence. It affects
children, their families, their schools and their communities.
It can be difficult to talk to your children or a young
person in your life about relationships, dating and especially sex but if you
don’t, who will? We must talk to our youth about how to recognize warning
signs, what a healthy relationship looks like and where to get help. Talk to them and listen to what they
have to say. If you don’t know where to begin, I have listed resources for you
below as well as some statistics.
deserves a healthy relationship. Not everyone knows what that looks like
(especially when they are looking to the media and culture for examples but
that is an entirely separate future blog post) so it is up to us to begin the
conversation. Reach out to your local agencies; see if they can bring someone
in to the schools to reinforce what you are teaching them at home. We can raise
awareness, we can prevent violence in relationships and we can do that one talk
at a time.
Did you know:
1 in 3 teens in the U.S. is the victim of physical, sexual, emotional,
or verbal abuse by a dating partner, a figure that far exceeds other types of
Girls and young women between the ages of 16 and 24 experience the
highest rate of intimate partner violence (almost triple the national average).
Violent relationships in adolescence can have serious ramifications by
putting victims at higher risk for substance abuse, eating disorders, risky
sexual behaviors, and further domestic violence.
Eighty one percent of parents believe teen-dating violence is not an
issue or admit they don’t know if it’s an issue.
One in three adolescents in the U.S. is a victim of physical, sexual,
emotional or verbal abuse from a dating partner, a figure that far exceeds
rates of other types of youth violence.
One in 10 high school students has been purposefully hit, slapped or
physically hurt by a boyfriend or girlfriend.
One quarter of high school girls have been victims of physical or
Approximately 70% of college students say they have been sexually coerced.
There are many organizations doing incredible work focusing
on relationship violence awareness and prevention. These are a few of my
US residents speak at least 329 languages. In some US cities less
than 60% of the population speaks English. About 32 million of us speak a
language other than English at home. If your service population is not diverse
now, it will be soon. Pew Research
projects the US Spanish speaking population will triple by 2050, and the Asian population will double. Success
in improving the health of ethnic populations will substantially influence the
future health of America as a whole.
Healthcare organizations have been working to develop their
capacity to address language barriers and cultural differences, but it’s
hard to make progress when the challenge is increasing along with the
complexity of treatments and healthcare delivery and financing systems. Non-
English speakers still face substantial communication barriers at almost every
level of the health care system.
show that communication barriers have a negative impact on health, discourage
use of preventive services, and increase costs of treatment through unnecessary
testing, delayed diagnosis, extended treatment times, and misinterpreted
instructions. Without information that they can understand and use in their
everyday lives, patients cannot engage in self-care or self-management. In
short, they cannot take responsibility for their health and be partners in treatment,
as effective care now requires.
In most cases, provider
organizations and insurers have the means to overcome language barriers. But
current practice in most communities still reflects an assumption that it is
the patients' obligation to make themselves understood, to ask appropriate
questions and to correctly interpret and comply with instructions. In most
instances, this assumption is wrong as a matter of law. Federal and state civil
rights laws and Medicaid regulations require access to linguistically
appropriate care. These laws are the basis for accreditation standards that
require providers and insurers to position themselves for our multicultural future.
Studies show that print
materials, particularly in combination with brief counseling, can increase
recall, compliance, and behavior changes; and reduce consultations regarding discomforts
that could be self-managed. Health information is increasingly available and
accessed online, through mobile devices and virtual patient educators. Still a
clear message from research participants
is that written information should always be available, even in the
presence of multiple other media.
While they are not a total
solution, CLAMs remain the necessary foundation for a comprehensive
communication effort, and an obvious starting place to promote health literacy.
Organizations serving diverse populations will need to hone a process to
develop and test English language materials, and to adapt essential proven
materials for non-English speakers.
More on that next time. Stay tuned.
Previously in this space, we talked about the identified consequences
of health literacy. I argued that the documented presence of those
consequences in a mother’s (or other’s) life would be
evidence that she possesses and
used health literacy skills to produce those consequences. Now we look specifically at critical
health literacy and its consequences.
Nutbeam (2000, 2008) followed literacy scholars Freebody and
Luke (1990) to name levels, or, more accurately, categories of health literacy:
functional/technical skills (ability to read and use numbers);
interactive/social skills (listening, speaking) and critical health literacy,
critical thinking skills that enable a person to apply information in new
circumstances (Nutbeam 2000) in one’s own life (Kickbush 2001).
While critical skills are commonly considered advanced or higher
level skills, some literacy scholars (Charner-Laird, Fiarman, Park, Soderber & Nunes, 2003)
have argued that critical
thinking, especially reflection, is so essential to making meaning from
information and using it in context, that it should be considered a basic
skill. They describe reflection as the “mind’s strongest glue” for making
connections essential to understanding any subject. Maternal health literacy includes all three
categories of health literacy skills, which mothers use in various combinations
according to the task and the context. Strong skills in one category (say
listening and remembering) can compensate for lesser skill in another category
Is Critical Health Literacy different from Health Literacy?
Sykes and colleagues (2013) wanted to know if critical health
literacy is really different from associated concepts like health literacy and
empowerment. So they analyzed the literature on critical health literacy and
interviewed UK health literacy experts. They concluded that critical health
literacy is indeed a unique concept differentiated from related concepts by its
consequences: confidence or self-efficacy, improved quality of life, increased social capital, and improved health outcomes. The unique consequences of critical
heath literacy suggest that critical thinking is the active ingredient in
health literacy that leads to action and outcomes. This adds weight to our
operating theory at Beginnings Guides and the Center for Health Literacy
Promotion that reflection is a key lifeskill for mothers taking responsibility
for family health.
The Active Ingredient in Health Literacy: critical thinking
My friend and colleague, home visiting expert Linda Wollesenhas been saying for decades that mothers make progress when home visitors,
parent educators (I’ll add patient educators and health
educators) stop giving answers and instead ask questions that make mothers
think. In the process of working out answers to reflective questions mothers
learn to look objectively, critically at a situation to make sense of it and
choose a purposeful response, to formulate their own questions for information
seeking, to interpret information and use it for practical purposes in their
Basic health literacy, described as reading and numeracy skills
used to understand basic information needed to make appropriate health
decisions (Monday I will quit smoking) is insufficient to affect outcomes.
Action is required for outcomes, often sustained and difficult action. And
critical thinking skills are required to plan action, progress in the face of
barriers, and produce desired outcomes. So to be health literate, mothers and
others need skills in all three categories: functional, interactive and
critical health literacy. And the greatest of these is critical health literacy
— thinking skills to respond intentionally to the health
challenges and opportunities of everyday life.
Nutbeam D. (2000)Nutbeam, D.
(2000). Health literacy as a public health goal: a challenge for contemporary
health education and communication strategies into the 21st Century. Health
Promotion International, 15, 259267.
Nutbeam, D. (2008). The evolving
concept of health literacy. Social Science & Medicine, 67, 2072-2078.
Literacy: addressing the health and education divide.Health Promotion
International 16 (3), 289-297.
Sykes S, Willis J, Rowlands G
& Popple K. (2013). Understanding critical literacy: a concept analysis. Biomed
Central Public Health:13:150. http:www.biomedcentral.com1471
Let’s welcome the new year with some new
thinking about measuring health literacy.
It’s hard to say exactly what electricity
is, but if the lights are on, we know we’ve got it. And we
measure electricity by the light it produces. So it is with health literacy. It
is hard to say just what health literacy is, but we know it by its
consequences, and we can measure those consequences.
Services utilization, behaviors, self-care
Two recent systematic reviews and concept analyses (Sykes 2013,
Sorenson 2012) identified the consequences of health literacy. Both studies found the most frequently
reported consequences of health literacy are improved use of services,
behaviors, and self-care. These consequences reflect how people use their
health literacy skills in everyday life and what they actually do for health with the information and
support available to them.
Although these consequences are supposed or anticipated rather than
evidence-based (Sykes 2013), the documented presence of these consequences
would indicate that the person possesses and has used health literacy skills to
produce them. Studies using the Life Skills Progression instrument to assess
maternal heath literacy are building the evidence base.
The LSP Maternal
Health Literacy Scales rate mothers health literacy by their health and
healthcare-related actions practices and behaviors. Sequential measures show
change —improvement or regression. The LSP Healthcare Literacy Scale uses 9 items to rate
mothers’ use of information, emergency services, medical and dental
care and preventive services for herself and her child. The Selfcare Literacy
Scale uses five items to assess risk behaviors and selfcare practices. Three published studies using LSP data on three different cohorts
of mother-child dyads provide
evidence that mothers supported by home visitors trained to promote maternal
heath literacy produced the consequences of health literacy at increasing levels
over 12-18 months. So the recent
analyses of the consequences of health literacy confirm earlier findings that
the LSP can be used as meaningful
measure of MHL.
Next: the recently identified unique consequences of critical
health literacy add weight to our theory that critical thinking skill,
particularly reflection, is the active ingredient in health literacy that enables mothers (and others) to
transform their decisions into health promoting actions and outcomes. Stay
K. Van den Broucke S, Fullam J,
Doyle G, Pelikan J, et. al. (2012). Health Literacy and Public Health: A
systematic review and integration of definitions and models. BMC Public
Smith, S. A., & Moore, E. J. (2012). Health literacy and depression in the context of home visitation. Maternal and Child Health Journal, 16, 1500-1508.
Carroll LN, Smith SA & Thomson NR. (2014). The Parents as Teachers Health Literacy Demonstration Project: Integrating an Empowerment Model of Health Literacy Promotion into Home-Based Parent Education. Health Promotion Practice pii: 1524839914538968. [Epub ahead of print]. Available on Internet at: http://hpp.sagepub.com/content/early/2014/06/23/1524839914538968.abstract
Mobley S, Thomas S, Sutherland D, Hudgins, J, Ange B & Johnson M. (2014) Maternal Health Literacy Progression Among Rural Perinatal Women. Maternal Child Health J 18: 1881-1892.
Beginnings Pregnancy Guide 9th Edition Sold Out
The second printing of the 2014 is underway. The scan code that instantly links Beginningsreaders to additional prescreened information via the Internet on a mobile device has proved popular. In a survey of pregnant women in SC, we found that respondents rarely use toll free numbers; while nearly all reported finding health information online. The entire website is available on your mobile device.
Websites Continue to Grow
Beginnings Guides had 155,00 visitors in 2014. The Center for Health Literacy Promotion had 55,000 visitors. The blogs were read by 100,00 including 6900 reads in the last 30 days. And we have 1310 Twitter followers. Kudos to Beginnings Webmother, Simone Snyder.
Most read blogs
(this one was on the most-read list for 2013, too)
Promoting Maternal Health Literacy Nationally & Internationally
Free Health Literacy Training Videos
We produced a series of training videos in collaboration with the National Network of Libraries of Medicine Pacific Northwest Region. This from the National Libraries Website:
Center for Health Literacy Promotion offers free training
Together with the National Network of Libraries of Medicine, the Center for Health Literacy Promotion has put together three short training sessions on understanding and promoting health literacy designed for social and health services providers and programs. Each session includes a short video, a pre- and post-test (with answer key), a handout, and a facilitator's guide. All three sessions and their resources are available to download or view for free online.
To view these resources, visit the Center for Health Literacy Promotion:
Published Article: Parents As Teachers Health Literacy Demonstration Project
Carroll LN, Smith SA & Thomson N (2014). Integrating an Empowerment Model of Health Literacy Promotion into Home-Based Parent Education. Health Promotion Practice pii: 1524839914538968. [Epub ahead of print] Read the article
Guest editor, Curationis Special Edition:
This turned out to be a monumental work and an inspiring labor of love. It was a joy and a challenge to work with a dozen authors whose work is at the foundation of efforts in southern and eastern African countries to develop professional education curricula and build a workforce of nurses dedicated to care of children. With health systems only about 20 years old, this work is underway to differentiate care of children from care of adults. Therefore, the articles focus on issues in professional education and practice. There are many lessons we in the US can learn from their work to build a healthcare system grounded in child rights, and to effect systems change in the face of racism and limited resources. Curationis, a South African nursing journal has published the special edition online with free access for all. It will appear in print in 2015.
HARC VI Washington DC Nov 4-5
Family transitions precluded my travel to DC this year. But I was not totally absent. Linda Wollesen, developer of the LSP presented in my stead results of a study conducted in collaboration with Anne Turner and colleagues at University of Washington Northwest Center for Public Health Practice. Conclusion: parents can and do manage child oral health, even in the face of poverty, low education and limited English proficiency where service and supports to use them are in place. This is on the list to publish in 2015.
New & Contintuing in 2015
Worldwide Universities Health Literacy Network
Last year in Sydney I worked with an awesome group scholars/practitioners/patient representatives to instigate an international collaboration on promoting health literacy as a personal and community asset. The group has joined with others who began similar talks in 2012 at the first Worldwide Universities Health Literacy Network meeting in Southampton, and expanded to include representatives of countries in Europe, Asia, Africa , South America (and me). The collaborators have been holding monthly meetings via Skype and are developing funding proposals to address maternal health literacy globally.
CenteringPregnacy Health Literacy Trial
This project continues. I got to visit the site of the comparison group, Greenville Health System, Greenville, SC. We're searching for a second site. Want to be an intervention site? Contact me!
Maternal Health Literacy: Untangling the "Web of Interaction"
The research project for 2015 is funded by the National Library of Medicine. The study addresses an urgent need to determine what promotes maternal health literacy, especially in historically underserved poverty populations. We are identifying factors in the home and family context that influence mothers'health literacy, and how those factors interact. Understanding the context in which mothers use information and services for personal and child health can guide intervention design, tailoring and evaluation. We are looking for ways to visualize data to suggest points of intervention and help home visitors to answer the ever-vexing question: where to begin?